Frustration!

That sums it up. I don't even feel like posting but I know many of you are checking in with us daily to see how things are going.

Taylor had a fairly good day of eating and drinking (no where near normal amounts but at least she was interested somewhat). She did one square of ex-lax last night. Today they decided to remove the IV for the day and see how she does. We still didn't have a BM by noon and her x-ray showed a large amount of gas in the upper section of her colon and liquid stool in the lower part that wasn't moving. Her colon just doesn't work! It is very lazy and doesn't move anything thru the way it should. So frustrating!!

The doctor decided it would be a good idea to do irrigations and get that stool out so possibly the gas would move thru. We really need her to eat and drink MORE and they were hoping to get the gas out so she would feel more like doing that.

The irrigations are horrible. She is very scared and cries and screams. They assure me they are not painful, but I cannot stand to see her going thru such invasive procedures. It took 3 people holding her down and the doctor performing the irrigation. I could only hold her hand and tell her it would be over soon. They want me to learn how to do them if they decide to do another tomorrow. I'm not exactly sure how I will do these at home - I don't have enough hands to hold her down and do what I need to do! Oh this path we are on just stinks! I'm trying to be positive and know that it is in her best interest, but that is nearly impossible sometimes.

She is eating some now and finally calmed down. Guess we'll see how the rest of the day goes.

More later...