Night Owl

Do you remember that Taylor didn't fall asleep until 10:30 last night?? Well I thought we were on track for an early bedtime tonight. Taylor started winding down around 6:00 and started nodding off. She feel asleep around 6:30 and I was hopeful that was it for the night. NOPE! She woke up around 7:30 and has been a live wire ever since.....uggh!

Good news though. She was removed from the pain pump today and we haven't needed to push any pain meds thru her PICC, so that is good. One less tube and pump is always a good thing. This also means she doesn't have to wear the monitors anymore so no more alarms in the middle of the night. Well, there are alarms on her other pumps but they rarely go off at night.

She also started taking her Ditropan by mouth today and they removed the patch. We were told the Ditropan usually works better orally, so we pray there will be big improvements with the bladder spasms by tomorrow.

That's about all I can think of tonight. My brain is ready to shut down for the night. We have made it half way - day 5! Praying we can make it 5 more - then we will start introducing clear liquids. Hooray. We could also pray that Dr. Pena decides to try liquids earlier - one can hope right?!

Leaning on Him....